Another Face..... Of Multiple Myeloma

  We always think about how an adult processes the news of cancer; However, what about a child? A young one at that... During Multiple Myeloma Awareness Month , I will launch a children's book titled " Mama's Blood is Purple and Pink"  and discuss how to address the elephant in the room, such as cancer. I've written a story of how the conversation can go without it being scary for a child, when it can be, and is a scary experience. Debuting end of March 2026. Preorders available here We're also looking at Guest speakers to join the conversation here Further details will be shared on my Instagram page or website

 I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it.  The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation.   Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick . Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma? Y

 The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma.  After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed  MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question.  Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

 This was my first race that was a thrill to take part in. Multiple Myeloma has been a crutch that I've been able to keep at the back end of my shoulder. It is essential to keep living and doing which I tend to do at the 10th degree. Despite the labels, the Mudrun race was a new thing to do and crush. I live by breaking the rules and breaking those assumptions that life stalls. We do know life is short and I find it my kryptonite to not allow the powers that be which sometimes are out of my control to limit what I want to do; perhaps Im fortunate in being able to do things with some limits of course with a different mindset than most.  Crushing this feat of a 3-mile race with 17 obstacles in the mud, and making it through my fear of heights has now allowed me to consider other bucket list possibilities within reason to take a stab at. Cheers to living your best, even when the "You" has been tested at all degrees. Courtesy: Spitfir Production Courtesy: Spitfir Production

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  Have you checked out our series yet? The next batch of conversations for " No Better Time Than The Presen t " will be with Myeloma Patient Advocate Thomas Goode. Diagnosed with multiple myeloma in 2005; Thomas now spreads his knowledge and experience with stem cell transplants. His advocacy has grown thanks to his doctors and nurse practitioners who've championed for him to share his story with others. He's also shared his story with IMF as well as other projects. Thomas has started a myeloma group in his area that is appreciated for the many needing that support. Join in and listen on March 10 at 7:00 PM on Instagram @myelomachick

  Happy New Year! Though it's now the second month of the New Year, there have been so many things that have occurred. First I hope everyone is well, considering we're still in the midst of a pandemic. Luckily some of the restrictions are slowly being lifted. It's still a hard mixed bag as it still is a difficult time more so for those with underlying conditions. Well a break from the craziness, I came up with the idea for a virtual series, titled " No Better Time Than The Present ", that allows me to have a candid conversation with Patient Advocates from various communities. We have some great guest speakers on the schedule for the year. This is a 1x a month show live on IG. February 17-6:00 PM- I'll chat with Michele Nadeem-Baker on her advocacy in CLL. Tune in if you have Instagram @myelomachick Check my website for other details on the series. Yolanda

 Hello Everybody! I hope all is well. I just wanted to share my news of hosting the Utah segment of Dinner with Docs through Patient Power  It will be viewable on Facebook Live - @patientpower.info

  2020 has been such an eye-opener in so many ways. The idea that life can be snatched right from under us has and is a reality that many try to avoid. COVID-19 showed us who was boss along with so many lessons. First Looks Can Be Deceiving- I think some in the myeloma community can agree that this virus has allowed many people to truly understand the importance and what happens when our immune system is compromised. The look of healthy, fit, never sick was not the case for many this year. I know for the many years living with multiple myeloma, many people didn't get it. Many didn't understand what a compromised immune system means, and how dire an infection could turn our situation from bad to turmoil in a quickness. The face of "got it together" has opened up the dialogue that the look of being ill has different faces, situations, and timelines. Second Family and Grounded If you've been the jet setter, or spend days seeing your family at night while being away a...

It’s been a while to post but this hasn’t slowed me down to handling the things I have on my plate. When COVID 19 hit like so many there was a huge concern, and still is in regard to what this virus means. It was also a concern in what It means for people with underlying issues such as myself. When we hit into the second month of quarantine did I move my concern to action by reaching out to my team to get my blood work tested. My greatest fear was would my present remission state change due to this virus? As I’m sure there are many people worried about similar thoughts. We were at a point where for many we could not reach our doctors for a one to one appointment, and that is scary and frustrating for anyone with cancer. What do you do when you’re totally alone in this or feel like you’re in it alone? Questions I’ve been active on the circuit talking with other cancer survivors during this time, and I tell you it’s been quite scary listening to others express their fee...

Chronic Fitness Countdown on Biteable .

Hi There, I'll be teaming up with my buddy Kenny Capps for a cool podcast on everything thing myeloma. We hope to give a different outlook on topics and what is on the mind of many young adults affected by the disease multiple myeloma. More details to follow soon. Email me for more information- madaboutmyeloma9@gmail.com

I've been moving and shaking in the myeloma community, and it feels good! Anyone who has wandered onto my blog, know that I'm doing and feeling well... Sort of, as I did have walking pneumonia some weeks back. If it's not one thing it's another. I'll have my labs drawn and a follow-up in a few weeks and pray there won't be any hiccups in my remission stage. Well just to get you up to speed, I did a presentation at Mount Sinai Hospital on the Stain of Racial Disparities as it relates to Multiple Myeloma. I touched on the way of the few African American advocates with this disease; We're far and few between, yet cover this beast in higher incidences. Apparently, this conversation has opened up the door to more discussions such as this, and I'm happy to keep at it! I've been working on a fitness coaching/ trainer business and look forward to our website in a few months, or sooner. So I know exercise can be a sore subject for many, as who has...

Hey Everyone, I'm doing well on this end. I'm currently in remission, and my follow-up next week will actually reconfirm that. We will also discuss the next steps. A lot has taken place this year and I'm just moving with the flow of things. I've been doing my share of writing via different formats online, so I'm excited about helping those also going through myeloma or any other blood-related cancer. I know this is still a harsh struggle for so many of my fellow MM's. I know in the past few months a few people I follow on social media have had a time with the prognosis of their disease, and one has recently passed away. When I hear stories like this it reminds me, that no matter remission this is still a blunt reality that never leaves you. I will always be on pins and needles, as so many of us living this new life. However, with that said I'm LIVING MY BEST LIFE  and doing what I want to do, with a great bunch of friends and family in my corner. Chec...

The holidays can be joyous with plenty of cheer, but as we leave those festivities of 2017; you may continue to fester the continued reality of your multiple myeloma. The reminder that beginning or continuing your goals to beating this illness is still fresh and a part of your new year's resolution.  New Year Starter Survival Tips Family and Friend Time I know many embraced the time they have with loved ones for the holiday, but now more than ever you'll need that bond for 2018.  Having those who care for you no matter what life brings your way can settle your peace of mind. The elephant in the room is real - now it's time to beat this with those who you trust to hold your hand through the process.   Eating Resolutions Okay, the holidays are over and if you're lucky you've gained a few pounds. I say this as too often we can't stomach a lot due to the exhausting meds. Well now it's time to stay on a regimen that allows you to inta...

It's been just about a week within this challenge, and one thing that's been established is that  I've been very mindful of labels. Since I've been on my fitness journey, I've looked at labels for it's calorie intake, but not really focused on the sugar make-up. Now that I know the servings suggested a day, I can work my diet around those suggested. I found myself not craving anything sugary. I've even stopped my gum chew, which I normally do once a day, with the exception of 1 day. Meal plan. -Water 22 oz with 1/4 tsp of lime juice -No carbs or white rice, pasta, starch, can goods -Homemade soup (green pea and broccoli) -shredded chicken stew (carrots, onions, garlic, cabbage, green beans, chicken thighs, and tomatoes) Here's a few pictures of my diary. Yesterday was a bit off, where I did engage in a bagel... that was my carb, which equals sugar- looking at about 43- 48gm of starch.  Yellow Split Pea Soup  Chick Pea Fritters ...

If you haven't figured it out as of yet. I'm a Fitness Advocate in training. I truly believe diet is the key in maintaining your chronic issue. Starting tomorrow, I'll start my no to low sugar challenge to shed some weight. I'll make a meal dairy and cut some foods that lead to the harsh sugar element, that does cruel things for someone dealing with myeloma. If  you'd like to join me- contact me via Twitter I'll also share a few recipes on this journey and hope to report of declined weight. Foods With Sugar: Cola. Sweetened cereals. White bread. Candy. Granola/energy Bars—up to 25 grams for one bar. Juice and other sweetened beverages. Bakery Items (muffins, cookies, etc) Frozen yogurt and ice cream. A lot of the above are not in my diet anyway, so this shouldn't be too cumbersome. I wanted to do this challenge not only to lose some weight that has increased with the multiple cocktail of treatments that I am on, but to also stir away...

Hypertension may seem like an ancient reference, as the term “High Blood Pressure” is normally used; no matter the reference it’s still a prevalent topic in your health.   This disease has a way of springing up out of the blue, but does it really? Oftentimes we may shrug off signs that something else is going on, especially when trying to maintain multiple myeloma.   The thought may be “Now what… something else to deal with”, but this something else is a huge deal. What is High Blood Pressure? High blood pressure is not easily defined when defining the cause, but it‘s suggested that anyone can develop the disease, and though it’s not curable it can be managed once you’re diagnosed. Blood pressure is the force of blood pushing against blood vessel walls. High blood pressure (HBP) means that the pressure in your arteries is higher than it should be. Your pressure is defined by two numbers that include systolic and diastolic readings. A pressure reading generally...

Cancer has a way of effecting chaos in anything it gets in contact with. It can also be said and witnessed that it does not discriminate in color or age. In this post I wanted to talk a bit about age and how anyone can be diagnosed with the cancer. There are 100,000 babies diagnosed with some form of cancer; The most commonly known are leukemia, brain, retinoblastoma (eye), and neuroblastoma (stomach). How can it be a that a child fresh and new has in some way been subjected to cancer so young? It's so sad to hear stories whether your new to this earth or have lived a full life, you just may be affected with some form of cancer in your lifetime. I recall some years back it was assumed if someone in your immediate family had cancer, you may be be predisposed as a hereditary trait, but the way it now shows this is no longer the thought. There are so many factors to consider besides hereditary traits: Environment Food Water Chemicals Age This post I wanted to just touch ...

Well I've completed my 21 day fitness challenge- didn't have much time to give a day by day plan with the exception on IG posts -Yoliecooks. It's been some interesting few weeks, but happy to say I safely lost 5 lbs, and 4 more to go. This challenge has taught me that I don't have to just go with the flow, but I can move towards a healthier eating regimen as well as workout. This challenge was more rewarding than when I normally workout at the gym... with that I'm proud of the results. -Losing some of waist and stomach- states happiness on my part. Healthy mindset is a must for those going through chronic conditions. The way to move ahead in making changes is towards your diet and getting some form of physical activity*. *Always speak with your doctor when you want to go that route of physical activities in what should and should not be done, based on your individual situation. Diet My diet consisted of mindfulness - period! It was refreshing to e...