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Showing posts from February, 2013


Funny, I’m sitting here amazed how I have so many things going on, yet faced with cancer... like really WTF?!!! We’re planning the 1 year anniversary of my foundation Mae’s Breath and I’m promoting my book- Another Face of Multiple Myeloma , and spearheading my start up. I had a surreal aha moment…. It’s really true- to do all you want to do with a faith, commitment, and hope. Trials and tribulations is the name of the game in life, but I tell you it never fails to amaze me how some can’t make it through when the trials push hard, yet those such as myself, can’t fathom the thought of giving up. I believe when you give up is when your body and mind shuts off. The fight and walk in life is not easy; cheers for so many who want to keep pushing. R.I.P Mindy McCready Never give up!!  

Anxiety over lab results...

Today was my first lab visit for the New Year. I was excited late last year when my clinic at Mount Sinai moved to another building more fitting for the patients and staff of mm, I was ecstatic. However, the rigmarole passing security is so taxing. My process every lab and doctor visit is trying and quite frankly stressful. First passing security which I mentioned then going to the floor I need to go to, and from that point another check point explaining why I’m there, then sitting with a rep for insurance purpose, then wait to be called to drain my blood. I’m sorry that is just too much…. You literally have to speak face to face with about 4-5 people before your time is over. I woke up at 3:00am to get on an early morning bus from Pa, just to make in time for my 7:30am lab, only to be told that the reps were pulled away for an emergency meeting- like really! Then when I sit to get blood drawn there’s an expired data process where the doctor’s team has to re-assess, but they were in a

&#%@$@ - Snapple Pop

Well this year started off quite interesting. The first two weeks in were grand, but the 3rd week got beyond bizarre. I had two issues with two co-workers who quite bluntly spoke to me in a way I haven't gotten quite over. However, with this said God is sooooooooooooooooooo good! This is the year of change I feel it in my bones. This is a year of a clean bill of health and for those struggling with a diagnosis of multiple myeloma, understand and know and believe that better things are in store. My book Another Face will be available in a matter of weeks. I'm proud of this work yet anxious how my party of loved ones who didn't know- will now be enlightened. Hum, this should be interesting- but good. The more people educated on myeloma the better. Hope you like my little girl Liz above, she has a sector of friends just like her that you may see time to time, just to keep the momentum of my humor and outlook of this pest MM :) As for the two co-workers I mentioned-