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Showing posts from 2016

Health Advocate 101... For You

Okay, I've received a few call outs on some very important subjects in the war of Myeloma, and thought why not prepare a simple reference to be mindful, as you take on your new journey in fighting multiple myeloma.... or any ailment Here are the top 3 for 2016 To tell the truth my time with Myeloma and handling other family health matters- I feel like I should sign up for a position as a Patient Advocate because there's something to be said if you don't speak up for the most important person in your life in this moment in time... and that is YOU! 101 A Learn to Listen... Then Speak Newbies- You''ll be bombarded with a lot of details about your present position. I've been there - it will be very overwhelming and at times frustrating. Seasoned- I know it- you know the routine and want to get on with the technicalities. You've been through the routine with Social Workers, Oncologist, Nurses, Insurance Claims for a while now. Well n

Finally... Some Updates

Hi All, I'm well and still kicking... Thank God! I know it's been awhile but I've been active on my twitter, so if not blogging I've been live on other forms of social media. I've been busy with life in general, whether work, forming businesses, Dr appts... it can be a bit taxing. Well one of the developments is forming a wellness training program for ..... you guessed it- people like me and possibly you. I've encountered a lot the last few years but through it all, I've been consistent with physical self. Now, what does that mean you ask? Well I've tried to stay fit and active to the best of my abilities. It's not easy taking dex, rev,acyclovir, velcade... more recently carfilzomib. Quite frankly a lady gets tired and at times sluggish; However, I've worked out details to persevere despite the "sleepy syndrome" I like to call it. I really don't know how I do the things I do, and how my body is still functioning as we've bee