Another Face..... Of Multiple Myeloma

 I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it.  The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation.   Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick . Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma? Y

 The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma.  After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed  MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question.  Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

 This was my first race that was a thrill to take part in. Multiple Myeloma has been a crutch that I've been able to keep at the back end of my shoulder. It is essential to keep living and doing which I tend to do at the 10th degree. Despite the labels, the Mudrun race was a new thing to do and crush. I live by breaking the rules and breaking those assumptions that life stalls. We do know life is short and I find it my kryptonite to not allow the powers that be which sometimes are out of my control to limit what I want to do; perhaps Im fortunate in being able to do things with some limits of course with a different mindset than most.  Crushing this feat of a 3-mile race with 17 obstacles in the mud, and making it through my fear of heights has now allowed me to consider other bucket list possibilities within reason to take a stab at. Cheers to living your best, even when the "You" has been tested at all degrees. Courtesy: Spitfir Production Courtesy: Spitfir Production

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  Have you checked out our series yet? The next batch of conversations for " No Better Time Than The Presen t " will be with Myeloma Patient Advocate Thomas Goode. Diagnosed with multiple myeloma in 2005; Thomas now spreads his knowledge and experience with stem cell transplants. His advocacy has grown thanks to his doctors and nurse practitioners who've championed for him to share his story with others. He's also shared his story with IMF as well as other projects. Thomas has started a myeloma group in his area that is appreciated for the many needing that support. Join in and listen on March 10 at 7:00 PM on Instagram @myelomachick

  Happy New Year! Though it's now the second month of the New Year, there have been so many things that have occurred. First I hope everyone is well, considering we're still in the midst of a pandemic. Luckily some of the restrictions are slowly being lifted. It's still a hard mixed bag as it still is a difficult time more so for those with underlying conditions. Well a break from the craziness, I came up with the idea for a virtual series, titled " No Better Time Than The Present ", that allows me to have a candid conversation with Patient Advocates from various communities. We have some great guest speakers on the schedule for the year. This is a 1x a month show live on IG. February 17-6:00 PM- I'll chat with Michele Nadeem-Baker on her advocacy in CLL. Tune in if you have Instagram @myelomachick Check my website for other details on the series. Yolanda