Pivot

 The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. 

After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed  MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. 

Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and the remnants of the disease, and side effects are accurate, but for most, we're still here. I've had to learn a different career while living with multiple myeloma. I've had to learn assertively how to be vocal with my medical team. I've had to work long and hard with my body as partners in figuring this out. 

Cancer is never an easy thing, and even saying the word cancer rather multiple myeloma is triggering. Is it cancer or something else? Does it really matter, as this trial is hard. 

Pivot means changing up the way you do things, that is the case with multiple myeloma. In my household we live on do now, because we know the odds of expecting tomorrow to be here is a gamble.

I say to the many survivors- do now and live bright. You can only answer what brings you bright despite the odds and uncertainty. You're here in the moment so live full and bright and pivot accordingly.

It's Multiple Myeloma Awareness Month!

The time to fight is now, with integrity, grace, hope, and a smile…when you feel like it