Childrens Book on Multiple Myeloma

I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it.

The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation.

Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick.

Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma?

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Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...

Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

Another Face..... Of Multiple Myeloma

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