Skip to main content

New Way of Movement






It’s been a while to post but this hasn’t slowed me down to handling the things I have on my plate. When COVID 19 hit like so many there was a huge concern, and still is in regard to what this virus means. It was also a concern in what It means for people with underlying issues such as myself. When we hit into the second month of quarantine did I move my concern to action by reaching out to my team to get my blood work tested. My greatest fear was would my present remission state change due to this virus? As I’m sure there are many people worried about similar thoughts. We were at a point where for many we could not reach our doctors for a one to one appointment, and that is scary and frustrating for anyone with cancer. What do you do when you’re totally alone in this or feel like you’re in it alone?

Questions
I’ve been active on the circuit talking with other cancer survivors during this time, and I tell you it’s been quite scary listening to others express their feelings and for some defeat. It just proved to me how much we truly depend on our health team of doctors, nurses, lab techs, etc. to care for us, but when you can’t get that care when you need it exactly; well it just forms a whole bunch of emotions and anxieties. I didn’t react right away but after a while, I reached out to have a discussion on what should be done, and when it was suggested to get local labs at a lab site closer to my home I was pleased. I was pleased because I stayed vigilant asking the question and following up. I think in cases like this some tend to feel that they should be approached in care, and in this case that may not be the most ideal, as we are in an unprecedented time. Which proves the case the necessity for patient advocacy.

So I end this here to say stay forceful in your treatment process and know that you are not alone. If by any chance you don’t have a network that is strong in direction during this time, here are a few leads to get some assistance:




Be well and stay strong!
Yolanda

Comments

Popular posts from this blog

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi

Out of Commision

Hello Fellow Readers, Excuse the short absence. I was ill with some kind of strange viral infection- that no one knows for sure what it was..... This was one time I knew for sure MM was about to be the death of me! What started off as a quick turn sore throat to losing my voice in 1 day, to an ear infection the next day, to horrendous back spasms- i cannot tell you how much pain i was in. Now this may not have had anything to do with MM, but the back spasm and me crawling and dropping to the floor due to the pain.... I cannot tell you how crazy the experience has been. My concern was even more intense with the back spasms, as it was at my lower spine, where I already have small indications of lesions, so you can imagine how scary this was. I recovered from this, but hope there was no damage done, but my practioner assured me if there was fractions, I would not be about to bend and do some of the tests he had me do. I'll need to share this experience with my oncologist in th

Healthy Snacks-2014... Crunch Appeal

Okay, so you all know I'm trying to limit my sugar  and chicken intake. I'm very mindful of sugar and when enough is enough, so I still have a way to go. I came upon a recipe some years ago when diagnosed with myeloma and reading on the benefits of adding flax seed to diet. Flax seed is a great source of omega 3 fatty acids, which helps in reducing bone lost, stabilizing blood sugar, promoting weight loss, as well as increasing your immune system. I have to admit I'm a snacker and it's something about getting the munchies just when it's time to call it a night that the snack attack occurs. I like snacks that crunch... I don't know maybe it's a mental thing or something. Today, we're snowed in and I need a break from my business at Spitfir, so I've played around for tonight's snack when "The Walking Dead" series comes on:) Shall we begin?? Let's rock.....                                                        Flax Seed Twist