Still Kicking and Moving All Around

Hey Everyone,

I'm doing well on this end. I'm currently in remission, and my follow-up next week will actually reconfirm that. We will also discuss the next steps.

A lot has taken place this year and I'm just moving with the flow of things. I've been doing my share of writing via different formats online, so I'm excited about helping those also going through myeloma or any other blood-related cancer. I know this is still a harsh struggle for so many of my fellow MM's.
I know in the past few months a few people I follow on social media have had a time with the prognosis of their disease, and one has recently passed away. When I hear stories like this it reminds me, that no matter remission this is still a blunt reality that never leaves you. I will always be on pins and needles, as so many of us living this new life. However, with that said I'm LIVING MY BEST LIFE and doing what I want to do, with a great bunch of friends and family in my corner.

Check out Meet the advocates... That's me down there. A caricature by the great team of Blood. Cancer. com. They have comprised a great series that we the advocates hope to share our experiences, and hope they are beneficial in some way to you. We're all in this together!

Ask the Advocates: The Diagnosis

Cheers and Happy Holidays!
2018

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Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...

Another Face..... Of Multiple Myeloma

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