Still Kicking and Moving All Around

Hey Everyone,

I'm doing well on this end. I'm currently in remission, and my follow-up next week will actually reconfirm that. We will also discuss the next steps.

A lot has taken place this year and I'm just moving with the flow of things. I've been doing my share of writing via different formats online, so I'm excited about helping those also going through myeloma or any other blood-related cancer. I know this is still a harsh struggle for so many of my fellow MM's.
I know in the past few months a few people I follow on social media have had a time with the prognosis of their disease, and one has recently passed away. When I hear stories like this it reminds me, that no matter remission this is still a blunt reality that never leaves you. I will always be on pins and needles, as so many of us living this new life. However, with that said I'm LIVING MY BEST LIFE and doing what I want to do, with a great bunch of friends and family in my corner.

Check out Meet the advocates... That's me down there. A caricature by the great team of Blood. Cancer. com. They have comprised a great series that we the advocates hope to share our experiences, and hope they are beneficial in some way to you. We're all in this together!

Ask the Advocates: The Diagnosis

Cheers and Happy Holidays!
2018

Comments

Childrens Book on Multiple Myeloma

I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it. The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation. Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick . Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma? Y

Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

Mud Girl Obstacle 2023

This was my first race that was a thrill to take part in. Multiple Myeloma has been a crutch that I've been able to keep at the back end of my shoulder. It is essential to keep living and doing which I tend to do at the 10th degree. Despite the labels, the Mudrun race was a new thing to do and crush. I live by breaking the rules and breaking those assumptions that life stalls. We do know life is short and I find it my kryptonite to not allow the powers that be which sometimes are out of my control to limit what I want to do; perhaps Im fortunate in being able to do things with some limits of course with a different mindset than most. Crushing this feat of a 3-mile race with 17 obstacles in the mud, and making it through my fear of heights has now allowed me to consider other bucket list possibilities within reason to take a stab at. Cheers to living your best, even when the "You" has been tested at all degrees. Courtesy: Spitfir Production Courtesy: Spitfir Production

Another Face..... Of Multiple Myeloma

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