Still Kicking and Moving All Around

Hey Everyone,

I'm doing well on this end. I'm currently in remission, and my follow-up next week will actually reconfirm that. We will also discuss the next steps.

A lot has taken place this year and I'm just moving with the flow of things. I've been doing my share of writing via different formats online, so I'm excited about helping those also going through myeloma or any other blood-related cancer. I know this is still a harsh struggle for so many of my fellow MM's.
I know in the past few months a few people I follow on social media have had a time with the prognosis of their disease, and one has recently passed away. When I hear stories like this it reminds me, that no matter remission this is still a blunt reality that never leaves you. I will always be on pins and needles, as so many of us living this new life. However, with that said I'm LIVING MY BEST LIFE and doing what I want to do, with a great bunch of friends and family in my corner.

Check out Meet the advocates... That's me down there. A caricature by the great team of Blood. Cancer. com. They have comprised a great series that we the advocates hope to share our experiences, and hope they are beneficial in some way to you. We're all in this together!

Ask the Advocates: The Diagnosis

Cheers and Happy Holidays!
2018

Comments

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi

Out of Commision

Hello Fellow Readers, Excuse the short absence. I was ill with some kind of strange viral infection- that no one knows for sure what it was..... This was one time I knew for sure MM was about to be the death of me! What started off as a quick turn sore throat to losing my voice in 1 day, to an ear infection the next day, to horrendous back spasms- i cannot tell you how much pain i was in. Now this may not have had anything to do with MM, but the back spasm and me crawling and dropping to the floor due to the pain.... I cannot tell you how crazy the experience has been. My concern was even more intense with the back spasms, as it was at my lower spine, where I already have small indications of lesions, so you can imagine how scary this was. I recovered from this, but hope there was no damage done, but my practioner assured me if there was fractions, I would not be about to bend and do some of the tests he had me do. I'll need to share this experience with my oncologist in th

Healthy Snacks-2014... Crunch Appeal

Okay, so you all know I'm trying to limit my sugar and chicken intake. I'm very mindful of sugar and when enough is enough, so I still have a way to go. I came upon a recipe some years ago when diagnosed with myeloma and reading on the benefits of adding flax seed to diet. Flax seed is a great source of omega 3 fatty acids, which helps in reducing bone lost, stabilizing blood sugar, promoting weight loss, as well as increasing your immune system. I have to admit I'm a snacker and it's something about getting the munchies just when it's time to call it a night that the snack attack occurs. I like snacks that crunch... I don't know maybe it's a mental thing or something. Today, we're snowed in and I need a break from my business at Spitfir, so I've played around for tonight's snack when "The Walking Dead" series comes on:) Shall we begin?? Let's rock..... Flax Seed Twist

Another Face..... Of Multiple Myeloma

Search This Blog