The Audacity To Live...

I've been moving and shaking in the myeloma community, and it feels good!
Anyone who has wandered onto my blog, know that I'm doing and feeling well...
Sort of, as I did have walking pneumonia some weeks back. If it's not one thing it's another. I'll have my labs drawn and a follow-up in a few weeks and pray there won't be any hiccups in my remission stage.

Well just to get you up to speed, I did a presentation at Mount Sinai Hospital on the Stain of Racial Disparities as it relates to Multiple Myeloma. I touched on the way of the few African American advocates with this disease; We're far and few between, yet cover this beast in higher incidences. Apparently, this conversation has opened up the door to more discussions such as this, and I'm happy to keep at it!

I've been working on a fitness coaching/ trainer business and look forward to our website in a few months, or sooner. So I know exercise can be a sore subject for many, as who has the ability to workout after treatments? Well, I know all too well the challenges as fatigue hits many of us strong. Yet, with that being said, this has been my savior of being active while on treatment. My experience has been trying to keep positive and active while having this disease. Could this be why I'm in remission? Who knows but I'm sure it hasn't hurt the outcome. I'll offer my clients an online hub to follow my suggestions in being fit with restrictions. I hope to share this with you very soon :)

I'm honored to have been accepted to 2019 Healthe Voices in Dallas Texas. Healthe Voices is a spectrum of engaging and impactful advocates repping their platform. I was one of the few repping multiple myeloma. There are some interesting things in the works as we move in #madabout myeloma movement... won't you join me?

Well that's about it.

The audacity to live is about trying, moving and staying relevant as we face this disease together!

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Comments

Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

Nominated for Social Health Awards- Community Cultivator

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Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...

Another Face..... Of Multiple Myeloma

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