Skip to main content

The Audacity To Live...




I've been moving and shaking in the myeloma community, and it feels good!
Anyone who has wandered onto my blog, know that I'm doing and feeling well...
Sort of, as I did have walking pneumonia some weeks back. If it's not one thing it's another. I'll have my labs drawn and a follow-up in a few weeks and pray there won't be any hiccups in my remission stage.


Well just to get you up to speed, I did a presentation at Mount Sinai Hospital on the Stain of Racial Disparities as it relates to Multiple Myeloma. I touched on the way of the few African American advocates with this disease; We're far and few between, yet cover this beast in higher incidences. Apparently, this conversation has opened up the door to more discussions such as this, and I'm happy to keep at it!

I've been working on a fitness coaching/ trainer business and look forward to our website in a few months, or sooner. So I know exercise can be a sore subject for many, as who has the ability to workout after treatments? Well, I know all too well the challenges as fatigue hits many of us strong. Yet, with that being said, this has been my savior of being active while on treatment. My experience has been trying to keep positive and active while having this disease. Could this be why I'm in remission? Who knows but I'm sure it hasn't hurt the outcome. I'll offer my clients an online hub to follow my suggestions in being fit with restrictions. I hope to share this with you very soon :)

I'm honored to have been accepted to 2019 Healthe Voices in Dallas Texas. Healthe Voices is a spectrum of engaging and impactful advocates repping their platform. I was one of the few repping multiple myeloma. There are some interesting things in the works as we move in #madabout myeloma movement... won't you join me?

Well that's about it.

The audacity to live is about trying, moving and staying relevant as we face this disease together!

Best


Comments

Popular posts from this blog

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...

Out of Commision

Hello Fellow Readers, Excuse the short absence. I was ill with some kind of strange viral infection- that no one knows for sure what it was..... This was one time I knew for sure MM was about to be the death of me! What started off as a quick turn sore throat to losing my voice in 1 day, to an ear infection the next day, to horrendous back spasms- i cannot tell you how much pain i was in. Now this may not have had anything to do with MM, but the back spasm and me crawling and dropping to the floor due to the pain.... I cannot tell you how crazy the experience has been. My concern was even more intense with the back spasms, as it was at my lower spine, where I already have small indications of lesions, so you can imagine how scary this was. I recovered from this, but hope there was no damage done, but my practioner assured me if there was fractions, I would not be about to bend and do some of the tests he had me do. I'll need to share this experience with my oncologist in th...

My Story is Your Story.... Or Is it?

Okay, it's clear those with mm have experienced different journeys than others, whether doctor care, medicine faux paus, infections, lesions, renal issues, anemia, Thrombosis, or no signs of  lingering harsh effects at all. My pain in the $#^ with myeloma as of this Tuesday April 23 is just the slight uncomfortable discomfort ever so lightly in the lower chest area, like someone gave me a hard push in the chest, or the slight pain at the lower back, where the lesion is being watched once a year with hopes it doesn't act up and calling for treatment. My only treatment thus far has been radiation at the chest sternum, and me hoping my skin turns back to normal, well 2 1/2 years in, I've realized this isn't going to happen! Radiation burn is just that a horrible burn! Health coverage - no issues yet, but than again I'm not on medicine so not sure of the bull that comes with having to be medicated for a specific amount of time. Bone marrow transplan...