The Audacity To Live...

I've been moving and shaking in the myeloma community, and it feels good!
Anyone who has wandered onto my blog, know that I'm doing and feeling well...
Sort of, as I did have walking pneumonia some weeks back. If it's not one thing it's another. I'll have my labs drawn and a follow-up in a few weeks and pray there won't be any hiccups in my remission stage.

Well just to get you up to speed, I did a presentation at Mount Sinai Hospital on the Stain of Racial Disparities as it relates to Multiple Myeloma. I touched on the way of the few African American advocates with this disease; We're far and few between, yet cover this beast in higher incidences. Apparently, this conversation has opened up the door to more discussions such as this, and I'm happy to keep at it!

I've been working on a fitness coaching/ trainer business and look forward to our website in a few months, or sooner. So I know exercise can be a sore subject for many, as who has the ability to workout after treatments? Well, I know all too well the challenges as fatigue hits many of us strong. Yet, with that being said, this has been my savior of being active while on treatment. My experience has been trying to keep positive and active while having this disease. Could this be why I'm in remission? Who knows but I'm sure it hasn't hurt the outcome. I'll offer my clients an online hub to follow my suggestions in being fit with restrictions. I hope to share this with you very soon :)

I'm honored to have been accepted to 2019 Healthe Voices in Dallas Texas. Healthe Voices is a spectrum of engaging and impactful advocates repping their platform. I was one of the few repping multiple myeloma. There are some interesting things in the works as we move in #madabout myeloma movement... won't you join me?

Well that's about it.

The audacity to live is about trying, moving and staying relevant as we face this disease together!

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Childrens Book on Multiple Myeloma

I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it. The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation. Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick . Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma? Y

Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

Mud Girl Obstacle 2023

This was my first race that was a thrill to take part in. Multiple Myeloma has been a crutch that I've been able to keep at the back end of my shoulder. It is essential to keep living and doing which I tend to do at the 10th degree. Despite the labels, the Mudrun race was a new thing to do and crush. I live by breaking the rules and breaking those assumptions that life stalls. We do know life is short and I find it my kryptonite to not allow the powers that be which sometimes are out of my control to limit what I want to do; perhaps Im fortunate in being able to do things with some limits of course with a different mindset than most. Crushing this feat of a 3-mile race with 17 obstacles in the mud, and making it through my fear of heights has now allowed me to consider other bucket list possibilities within reason to take a stab at. Cheers to living your best, even when the "You" has been tested at all degrees. Courtesy: Spitfir Production Courtesy: Spitfir Production

Another Face..... Of Multiple Myeloma

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