Another Face..... Of Multiple Myeloma

Okay, I've received a few call outs on some very important subjects in the war of Myeloma, and thought why not prepare a simple reference to be mindful, as you take on your new journey in fighting multiple myeloma.... or any ailment Here are the top 3 for 2016 To tell the truth my time with Myeloma and handling other family health matters- I feel like I should sign up for a position as a Patient Advocate because there's something to be said if you don't speak up for the most important person in your life in this moment in time... and that is YOU! 101 A Learn to Listen... Then Speak Newbies- You''ll be bombarded with a lot of details about your present position. I've been there - it will be very overwhelming and at times frustrating. Seasoned- I know it- you know the routine and want to get on with the technicalities. You've been through the routine with Social Workers, Oncologist, Nurses, Insurance Claims for a while now. Well n...

Hi All, I'm well and still kicking... Thank God! I know it's been awhile but I've been active on my twitter, so if not blogging I've been live on other forms of social media. I've been busy with life in general, whether work, forming businesses, Dr appts... it can be a bit taxing. Well one of the developments is forming a wellness training program for ..... you guessed it- people like me and possibly you. I've encountered a lot the last few years but through it all, I've been consistent with physical self. Now, what does that mean you ask? Well I've tried to stay fit and active to the best of my abilities. It's not easy taking dex, rev,acyclovir, velcade... more recently carfilzomib. Quite frankly a lady gets tired and at times sluggish; However, I've worked out details to persevere despite the "sleepy syndrome" I like to call it. I really don't know how I do the things I do, and how my body is still functioning as we've bee...

Happy Labor Day Weekend Everyone! Living with multiple myeloma is no longer looked at as a death sentence, and yes there's many different experiences, those positive experiences shared gives us a bit of hope. May today's journey be grand, hopeful and remember never lose faith in the fight. Keep your faith, positive mind frame, and wit.

Hi everyone! It’s been awhile from my last posting… sorry. All well on my mm journey- but there are some call outs as I adjust to meds and my body reactions to this interesting journey. A month ago I awoke in agonizing pain at my right leg. It was an excruciating leg spasm from what I thought was a subtle stretch. Well let’s just say I’ve been having problems ever since. I know somewhere down the line this has to do with these crazy meds being taken- after my 3 rd week and alerting my team of weekly nurses, I was given a leg sonogram. It was so agonizing waiting the final results, but luckily there’s no signs of the dreaded DVT everyone speaks about that is actually quite scary…. What Is DVT? Deep Vein Thrombosis Clotting that can form in any area of the body, It’s more prevalent in the legs. The huge concern is when these clots travel through -out the body and travel to the lungs causing death of pulmonary embolism. Some signs to look out for: Warm skin Red ...

Read my story in Black Doctors. Org Feeling Good Myeloma warriors- on Zometa... HATE IT! More to report on this foolishness! MY STORY HERE

Okay, this has been a harsh winter and cold brutal temperatures can cause havoc on  the skin. When faced with any kind of disease and in this case  myeloma, cold, dry cracked skin is not a good day. Here's the first of my health segment I spoke about starting. I've noticed for myself being on the cocktail of drugs I spoke of, my skin tends to be super dry... more than usual. There was a point it was so cracked I thought it would bleed, and that's not cute! I had a regimen years ago when I had this dry patch of psoriasis or something on my *back that I wiped away and it never returned, I'm not sure what happened, but I went and did some research and looked to old school remedies. Old school method and the new. Let's start with: Hands Let's face it after people reference you by face, the hands are next. Hands are the makeup of what's going on with you,and yes I believe so. There have been times in meetings I'll cover mine up i...

  Well it's been a minute my fellow MM's. I've been feverishly working, whether on my 9-5, side projects, and event planning as Executive Director of my heart Mae's Breath Foundation . I've been doing the meds thing, and my stomach shows the after affect of those painful $%7 Bortezomib or better known Velcade shots. It's amazing ....  take a shot today and 5 days later I look down at my stomach to see a strange birthmark-like mark appear- yet everyone says it'll go away eventually... yeah right -like my chest radiation scar that took like 5 years or so to finally disappear... sought of! Anywho... The good news I suppose is my cancer and the recent yet current meds has brought me to 90% remission . I started treatment in October of 2014 and here it is March 2015, and in these short months my IGA level has dropped from 7000 (Not Good) to 400 (Very Good). I can't say I'm totally ecstatic because we all know how this cancer works... or do we?...