Skip to main content

WTF... My Leg Hurts!








Hi everyone! It’s been awhile from my last posting… sorry.
All well on my mm journey- but there are some call outs as I adjust to meds and my body reactions to this interesting journey. A month ago I awoke in agonizing pain at my right leg. It was an excruciating leg spasm from what I thought was a subtle stretch. Well let’s just say I’ve been having problems ever since. I know somewhere down the line this has to do with these crazy meds being taken- after my 3rd week and alerting my team of weekly nurses, I was given a leg sonogram.
It was so agonizing waiting the final results, but luckily there’s no signs of the dreaded DVT everyone speaks about that is actually quite scary….
What Is DVT?
Deep Vein Thrombosis
Clotting that can form in any area of the body, It’s more prevalent in the legs. The huge concern is when these clots travel through -out the body and travel to the lungs causing death of pulmonary embolism. Some signs to look out for:
Warm skin
Red skin
Swelling
Leg pain
Like we don’t have enough to think about L
It’s important that we pay special attention to our bodies and certain signs that we’re given that there may be a problem. My regimen as an mm pupil I consist of daily aspirin 81 mg to be proactive of DVT just in case. Effort made for constant movement of the leg when you’re in a stationary position is important- light stretches through- out the day is necessary. We have to keep that blood moving without hiccups.
Recently, my myeloma RN suggested tonic water for leg spasm as it has quinine. Quinine was used for malaria and it seems to help spasms; however the views are mixed in regards of too much use of quinine as the side effects are damning – like:
Nauseous
Ringing ears
As the amount used in tonic water are so miniscule it’s not considered a huge threat but is said to help a lot… with that said check with your doctor before drinking. I’ll try it perhaps not nightly as suggested as my system was rare but caused some call outs to my leg in general. Never a dull moment!

More information on tonic water and quinine here

Comments

Popular posts from this blog

Nominated for Social Health Awards- Community Cultivator

  Click Here for Details

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...

Pivot

 The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma.  After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed  MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question.  Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...