Always Something

What I’m learning and learning quite harshly is that life goes on with myeloma- this I knew; however

You can’t win being stubborn!

Though I’m a huge advocate of living a full and productive life, this does not mean doing things that are not considered unhealthy. My pattern of 4 -5 hours’ sleep has caught up to me in ways I didn’t think it would. My last post of a viral infection and now another huge health scare…. And may I say none of these have anything to do with multiple myeloma.

Lesson learned after a blood transfusion, collapsing, and seizure…. A change is going to come in one way or another. If you’re like myself constantly busy and not making the best decision in getting rest, take my words, you’re not going to win, because just when you want to be at the top of your game, your body will shut it down, and the hope is that it doesn’t shut you down permanently.

Lessons to be learned when terminally under watch (if you will):

-Little rest- opens the door for other relapses

-Poor diet- leads to problems

Well these are the main factors of lesson learned, not very difficult to remember to follow or lead, but for many we just don’t do what we’re supposed to do, until it’s too late.

I look at my diagnosis as a positive reflection of change, and for my own story I was doing well up until losing my mother a few years back, where I can now say I’ve slipped considerably on right from wrong.

Time for a refresher course…..

Watch out for my online seminar for working women who work with cancer-

How to maintain your health with the stress and employment

Date July 19 Time 9:00 am - 10:00 am

Interested – preregister (FREE) at myelomatour@gmail.com

Early registration = discount on book “Another Face of Multiple Myeloma”

Originally $15

~~Discount (early registration only) $8.00~~ Offer Passed

Comments

Childrens Book on Multiple Myeloma

I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it. The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation. Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick . Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma? Y

Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

Mud Girl Obstacle 2023

This was my first race that was a thrill to take part in. Multiple Myeloma has been a crutch that I've been able to keep at the back end of my shoulder. It is essential to keep living and doing which I tend to do at the 10th degree. Despite the labels, the Mudrun race was a new thing to do and crush. I live by breaking the rules and breaking those assumptions that life stalls. We do know life is short and I find it my kryptonite to not allow the powers that be which sometimes are out of my control to limit what I want to do; perhaps Im fortunate in being able to do things with some limits of course with a different mindset than most. Crushing this feat of a 3-mile race with 17 obstacles in the mud, and making it through my fear of heights has now allowed me to consider other bucket list possibilities within reason to take a stab at. Cheers to living your best, even when the "You" has been tested at all degrees. Courtesy: Spitfir Production Courtesy: Spitfir Production

Another Face..... Of Multiple Myeloma

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