Another Face..... Of Multiple Myeloma

I was wondering about something today and came up with what is the true look of cancer ? Odd question? Not really considering there's a misconception on how people perceive the ill to look. This is me....   I'll be a 5 year cancer survivor this October, which would be exact time I was officially diagnosed with mm. You look at me what do you see? My hair looks intact, I'm smiling through it all, my eyes are not sunken in.....    Last year my husband and I went to a community fair, one of the participants were The American Cancer Society representing a survey to that tracks individual health in relation to later health problems like cancer. Since I was already diagnosed with cancer my husband decided to take part, which would consist of a later appointment and blood work to keep in file, when the ladies asked me if I wanted to take part along with my husband, I announced that I currently have cancer... well the look they gave me was unsettling, ...

Hi Tomorrow holds a special day as I speak briefly on my book and help educate the community about this complex disease called multiple myeloma... madaboutmyeloma.com

My latest doctor visit left me with yet more decisions.... I'm feeling great! I feel alive I'm active , yet there always seems to be another master plan. My labs are still stable, but after reviewing a long and dreaded MRI results, I say long and dreaded because there was a lot of drama arranging this appointment and getting my insurance to approve my lower pelvic, which I've had along with my spinal observation, so it was confusing why they were giving me an issue. Thankfully everything was cleared despite me having to come back to my hospital two separate days to do the exam as opposed to getting it done in one day. Well the standing of the two prior lesions at the spinal area have not changed, but they did find faint viewing of two lesions now growing at the pelvic area. Did I mention a 3rd lesion at the lower spine disappeared from viewing and no longer exists......I'll talk about that and having faith later! So what does this mean.... More ^^%@#^ things th...

Hello, I would like to invite you to meet and greet chat with me via my first online book tour- with a bit of a twist. I'm looking forward to speaking about my book and my journey with MM, and how and what I've done to change my outlook on life after my diagnosis. We're offering discounts on the book if purchased from website the week leading up to tour, Giveaways, autographed copies, and chatting with many who are going through this difficult time. What I stress continuously is though you may have myeloma, it is very important to change the thought that myeloma does not have You. Life goes on- there's traveling to do, work to finish, and life to live! Mad About Myeloma... Really I am Tour Tour Date: June 3- 12:00pm-1:00pm June 7- 8:00pm- 9:00pm June 8- 10:00am - 11:00am Sign up detail is Free Contact - myelomatour@gmail.com for more details and dates of interest     www.madaboutmyeloma.com  

Okay, so I had my dreaded yearly MRI scheduled finally for last week. The 2-3 hour torture of being in this chamber exposed to invisible rays is always daunting, but as long as no needle is involved I'm okay sucking it up. The day before I got a call at my office that my appointment is confirmed- BUT my insurance has not confirmed all tests that need to be done... like I was flustered on whether I should be upset that they were calling me at 4:30pm after a long draining day with meetings and close to going home, or why I wasn't informed weeks ago that there was an issue. The rep told me I had a choice of rescheduling.... um to schedule these types of testing is not so easy and arranging time to do so is not a breeze either. I looked at the phone and what choice did I have but to say okay let's just do the testing of what was approved, and take it from there. My husband in I made it in to NY maybe earlier than needed, but rather early than late. I was up 3:00am in a ...

Okay, it's clear those with mm have experienced different journeys than others, whether doctor care, medicine faux paus, infections, lesions, renal issues, anemia, Thrombosis, or no signs of  lingering harsh effects at all. My pain in the $#^ with myeloma as of this Tuesday April 23 is just the slight uncomfortable discomfort ever so lightly in the lower chest area, like someone gave me a hard push in the chest, or the slight pain at the lower back, where the lesion is being watched once a year with hopes it doesn't act up and calling for treatment. My only treatment thus far has been radiation at the chest sternum, and me hoping my skin turns back to normal, well 2 1/2 years in, I've realized this isn't going to happen! Radiation burn is just that a horrible burn! Health coverage - no issues yet, but than again I'm not on medicine so not sure of the bull that comes with having to be medicated for a specific amount of time. Bone marrow transplan...

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...