Skip to main content

My Story is Your Story.... Or Is it?

Okay, it's clear those with mm have experienced different journeys than others, whether doctor care, medicine faux paus, infections, lesions, renal issues, anemia, Thrombosis, or no signs of  lingering harsh effects at all.

My pain in the $#^ with myeloma as of this Tuesday April 23 is just the slight uncomfortable discomfort ever so lightly in the lower chest area, like someone gave me a hard push in the chest, or the slight pain at the lower back, where the lesion is being watched once a year with hopes it doesn't act up and calling for treatment. My only treatment thus far has been radiation at the chest sternum, and me hoping my skin turns back to normal, well 2 1/2 years in, I've realized this isn't going to happen! Radiation burn is just that a horrible burn!

Health coverage- no issues yet, but than again I'm not on medicine so not sure of the bull that comes with having to be medicated for a specific amount of time.

Bone marrow transplant- my doctor never suggested this plan for my journey, which is good because I don't know for me if I would choose to go this route, and considering what is at stake with the recovery process.... just don't know about that, and I hope I don't have to ponder this decision any time soon....

Stories so different but condition still the same- like how the heck did we all get in this predicament is the question.
What's your story?


Y

Comments

  1. my wife was diagnosed last year, went trough radiation on spine , then stem cell , we felt good for 5 months them MM came back in big way. Lots of plasmatoysis and pain. We are on new drugh Krypolsis.. My suggestion, educate yourself about MM and get a head of it..

    ReplyDelete
  2. Hello Freidoon,
    Thank you for sharing! I totally agree, it's important to educate oneself on the full deck of options in making the best decision for each owns journey. This isn't like choosing what shoe to wear today, these are some major and complex decisions when deciding on treatment of myeloma. I wish you and your wife the very best on your journey.

    Best
    Yolanda

    ReplyDelete

Post a Comment

Thank you for your positive comments....

Popular posts from this blog

Nominated for Social Health Awards- Community Cultivator

  Click Here for Details

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi...

Pivot

 The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma.  After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed  MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question.  Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...