This $#@SH Aint Gonna Work

Well fellow MM’s I’m in my 5^th week of treatment. The time has come to proceed onward, as this has caused some havoc to my body.

My treatment includes:

-Dexamethesone

-Revlimid

-Velcade

The affect of these drugs are unexplainable!

My first reaction was like what the hell did I get myself into... like are my numbers really that

bad!!Has my situation really called for me to go down this road?

I'm sure many have had it worst but for an relatively healthy woman (once I suppose) and whose

not been one to run to a lot of meds if need not, this is a huge transition to my lifestyle.

I guess I'm happy to still have a lifestyle but my time has been interesting with this.

I have 3 more years of this. I don't know how this is going to work but this is going to be a miserable journey! I know my lord will not let me down even though the rock here feels like giving in and punching something in the midst.

I pray the New Year 2015 is better than the prior. I almost died this summer from other health ailments, and then this myeloma #%# this has just not been the best year, but with that said I’ve traveled to some great places this year and have taken part of some terrific activities. May the New Year be better for you all.

I’m offering a Christmas Stocking Stuffer of my book AnotherFace of Multiple Myeloma and The ins and outs of the fashion industry from afashion insider for $10.00.

Why does this still matter? It matters because I know my experiences can benefit someone elses journey in some or another going through the same trials, not to mention a 101 view of what it’s really like working in the fashion industry. At the end of the day I’ve been blessed.

Comments

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi

Out of Commision

Hello Fellow Readers, Excuse the short absence. I was ill with some kind of strange viral infection- that no one knows for sure what it was..... This was one time I knew for sure MM was about to be the death of me! What started off as a quick turn sore throat to losing my voice in 1 day, to an ear infection the next day, to horrendous back spasms- i cannot tell you how much pain i was in. Now this may not have had anything to do with MM, but the back spasm and me crawling and dropping to the floor due to the pain.... I cannot tell you how crazy the experience has been. My concern was even more intense with the back spasms, as it was at my lower spine, where I already have small indications of lesions, so you can imagine how scary this was. I recovered from this, but hope there was no damage done, but my practioner assured me if there was fractions, I would not be about to bend and do some of the tests he had me do. I'll need to share this experience with my oncologist in th

Healthy Snacks-2014... Crunch Appeal

Okay, so you all know I'm trying to limit my sugar and chicken intake. I'm very mindful of sugar and when enough is enough, so I still have a way to go. I came upon a recipe some years ago when diagnosed with myeloma and reading on the benefits of adding flax seed to diet. Flax seed is a great source of omega 3 fatty acids, which helps in reducing bone lost, stabilizing blood sugar, promoting weight loss, as well as increasing your immune system. I have to admit I'm a snacker and it's something about getting the munchies just when it's time to call it a night that the snack attack occurs. I like snacks that crunch... I don't know maybe it's a mental thing or something. Today, we're snowed in and I need a break from my business at Spitfir, so I've played around for tonight's snack when "The Walking Dead" series comes on:) Shall we begin?? Let's rock..... Flax Seed Twist

Another Face..... Of Multiple Myeloma

Search This Blog