This $#@SH Aint Gonna Work

Well fellow MM’s I’m in my 5^th week of treatment. The time has come to proceed onward, as this has caused some havoc to my body.

My treatment includes:

-Dexamethesone

-Revlimid

-Velcade

The affect of these drugs are unexplainable!

My first reaction was like what the hell did I get myself into... like are my numbers really that

bad!!Has my situation really called for me to go down this road?

I'm sure many have had it worst but for an relatively healthy woman (once I suppose) and whose

not been one to run to a lot of meds if need not, this is a huge transition to my lifestyle.

I guess I'm happy to still have a lifestyle but my time has been interesting with this.

I have 3 more years of this. I don't know how this is going to work but this is going to be a miserable journey! I know my lord will not let me down even though the rock here feels like giving in and punching something in the midst.

I pray the New Year 2015 is better than the prior. I almost died this summer from other health ailments, and then this myeloma #%# this has just not been the best year, but with that said I’ve traveled to some great places this year and have taken part of some terrific activities. May the New Year be better for you all.

I’m offering a Christmas Stocking Stuffer of my book AnotherFace of Multiple Myeloma and The ins and outs of the fashion industry from afashion insider for $10.00.

Why does this still matter? It matters because I know my experiences can benefit someone elses journey in some or another going through the same trials, not to mention a 101 view of what it’s really like working in the fashion industry. At the end of the day I’ve been blessed.

Comments

Plugging Multiple Myeloma

I had a wonderful conversation with a new friend on the trials of myeloma, and it was interesting that we’ve both experienced to some degree the nonchalant reactions when faced with our disease. The saying to walk a mile in one's own moccasins could never be far from the truth, sometimes you get the feeling that no one cares or your cause and or experience is not of interest...., or better yet taken seriously.... I'm reviewing various sources to promote Another Face of Multiple Myeloma , and after extensive research I found there a not many books on patient related experiences, which I find odd, with the exception of popular myeloma blogger Pat Killingsley, I found just two other personal stories from author's penned memoirs on myeloma, and one unfortunately passed away and the other I'm desperately trying to gather contact information. I was in the process of working with a top myeloma foundation to present my book to readers that could possbly relate to my experi

Mud Girl Obstacle 2023

This was my first race that was a thrill to take part in. Multiple Myeloma has been a crutch that I've been able to keep at the back end of my shoulder. It is essential to keep living and doing which I tend to do at the 10th degree. Despite the labels, the Mudrun race was a new thing to do and crush. I live by breaking the rules and breaking those assumptions that life stalls. We do know life is short and I find it my kryptonite to not allow the powers that be which sometimes are out of my control to limit what I want to do; perhaps Im fortunate in being able to do things with some limits of course with a different mindset than most. Crushing this feat of a 3-mile race with 17 obstacles in the mud, and making it through my fear of heights has now allowed me to consider other bucket list possibilities within reason to take a stab at. Cheers to living your best, even when the "You" has been tested at all degrees. Courtesy: Spitfir Production Courtesy: Spitfir Production

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