The Decisions With Chemo....

When you hear the words you have cancer.... What is your first thought?
Life, Death, and the thoughts of "Oh ^$%#* I may have to go through the
wails of chemotherapy, and not necessarily in this order.

Being told I had multiple myeloma was a whirlwind indeed, and I did have those oh crap
I will at some point need to take toxins/medicine to control this disease. I have not had the un-pleasure of being introduced to Revlimid , Thalomid and Velcade, but I know it is not an easy decision to decide on taking these options.

The uncertainties can be very mind boggling and challenging with the questions what ifs...
- What if I get thrombosis? A common possible side effect
- What if my hair falls out
- What if I can't recover from the treatment?
- Needles... Ugh!
- Will I feel better or worse?

The decisions of cancer are not easy and we all don't take this new life challenge in stride.
For some taking chemo means to extend life.... why question the goals of the treatment?
The questions that pile on for more than a few usually is feeling worse, developing additional
problems with their illness, and the more dreaded thought, what happens when all options are depleted? Then what?

The Decisions with Chemo is not fun!

Y

Comments

Pivot

The last few years have been interesting. Life has been busy, and this has taught me different perspectives on living with multiple myeloma. I wanted to expand on this on another point, but lately, I recalled when I thought my time here on Earth was near. I was deathly ill and it was clear that death was my fate and in this way. I survived that situation but it then expanded my walk further with multiple myeloma. After an arduous treatment, I met lower numbers and back-to-back 0 spike, and BMX showed MRD...REMISSION-YES! There has been a lot of pivoting in thinking one way and then having something else happen. It's clear there's no rhyme to reason; However, there's faith but that is even questionable for some folks. I know who questions faith- right? Some do and rightfully so when you don't have control over the situation. It feels okay in the moment to question. Pivot with multiple myeloma is about rethinking living. Yes, it is a drag to be on treatment, and th...

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Childrens Book on Multiple Myeloma

I've found I can talk with an adult all day about life with a multiple myeloma diagnosis, some get it, some are still clueless...it is what it is. Multiple Myeloma is relatable for those who are on their own journey, or those who have had a family or friend who was taken from them because of it. The conversation around cancer with young children holds a certain complexity. The question arises, should you say anything about it with small children as opposed to older children? How do you start the conversation? Is it necessary to be so candid with subtlety? After being diagnosed myself at an early age, and found myself in need of my own comfort in bringing on this conversation. Follow my journey as I start promoting my new book...title to be debuted at a later time on my social media page -Instagram @myelomachick . Whether having small children, grandchildren, nieces, or nephews...How have you shared your story with multiple myeloma? Y

Another Face..... Of Multiple Myeloma

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