Another Face..... Of Multiple Myeloma

  Click Here for Details

  Have you checked out our series yet? The next batch of conversations for " No Better Time Than The Presen t " will be with Myeloma Patient Advocate Thomas Goode. Diagnosed with multiple myeloma in 2005; Thomas now spreads his knowledge and experience with stem cell transplants. His advocacy has grown thanks to his doctors and nurse practitioners who've championed for him to share his story with others. He's also shared his story with IMF as well as other projects. Thomas has started a myeloma group in his area that is appreciated for the many needing that support. Join in and listen on March 10 at 7:00 PM on Instagram @myelomachick

  Happy New Year! Though it's now the second month of the New Year, there have been so many things that have occurred. First I hope everyone is well, considering we're still in the midst of a pandemic. Luckily some of the restrictions are slowly being lifted. It's still a hard mixed bag as it still is a difficult time more so for those with underlying conditions. Well a break from the craziness, I came up with the idea for a virtual series, titled " No Better Time Than The Present ", that allows me to have a candid conversation with Patient Advocates from various communities. We have some great guest speakers on the schedule for the year. This is a 1x a month show live on IG. February 17-6:00 PM- I'll chat with Michele Nadeem-Baker on her advocacy in CLL. Tune in if you have Instagram @myelomachick Check my website for other details on the series. Yolanda

 Hello Everybody! I hope all is well. I just wanted to share my news of hosting the Utah segment of Dinner with Docs through Patient Power  It will be viewable on Facebook Live - @patientpower.info

  2020 has been such an eye-opener in so many ways. The idea that life can be snatched right from under us has and is a reality that many try to avoid. COVID-19 showed us who was boss along with so many lessons. First Looks Can Be Deceiving- I think some in the myeloma community can agree that this virus has allowed many people to truly understand the importance and what happens when our immune system is compromised. The look of healthy, fit, never sick was not the case for many this year. I know for the many years living with multiple myeloma, many people didn't get it. Many didn't understand what a compromised immune system means, and how dire an infection could turn our situation from bad to turmoil in a quickness. The face of "got it together" has opened up the dialogue that the look of being ill has different faces, situations, and timelines. Second Family and Grounded If you've been the jet setter, or spend days seeing your family at night while being away a

It’s been a while to post but this hasn’t slowed me down to handling the things I have on my plate. When COVID 19 hit like so many there was a huge concern, and still is in regard to what this virus means. It was also a concern in what It means for people with underlying issues such as myself. When we hit into the second month of quarantine did I move my concern to action by reaching out to my team to get my blood work tested. My greatest fear was would my present remission state change due to this virus? As I’m sure there are many people worried about similar thoughts. We were at a point where for many we could not reach our doctors for a one to one appointment, and that is scary and frustrating for anyone with cancer. What do you do when you’re totally alone in this or feel like you’re in it alone? Questions I’ve been active on the circuit talking with other cancer survivors during this time, and I tell you it’s been quite scary listening to others express their fee