Hi All, I'm well and still kicking... Thank God! I know it's been awhile but I've been active on my twitter, so if not blogging I've been live on other forms of social media. I've been busy with life in general, whether work, forming businesses, Dr appts... it can be a bit taxing. Well one of the developments is forming a wellness training program for ..... you guessed it- people like me and possibly you. I've encountered a lot the last few years but through it all, I've been consistent with physical self. Now, what does that mean you ask? Well I've tried to stay fit and active to the best of my abilities. It's not easy taking dex, rev,acyclovir, velcade... more recently carfilzomib. Quite frankly a lady gets tired and at times sluggish; However, I've worked out details to persevere despite the "sleepy syndrome" I like to call it. I really don't know how I do the things I do, and how my body is still functioning as we've bee...
The challenges of being diagnosed with a rare disease, all while coping with day to day life experiences.